TOPEKA (KSNT) – Carrie Greenwood is a proud, life-long Topekan. She was born with the disability ‘arthrogryposis’ which is a rare, congenital joint contracture in two or more areas of the body. She ...

LAS VEGAS (KTNV) — International Day of Persons with Disabilities is a day to bring awareness to lesser known conditions and to raise money for cures. Organizations from all over the world, including ...

Disability life coaching is turning out to be just the balm columnist Brianna Albers needed to recall the importance of community in SMA.

WHITTIER, Calif. -- Jazmin Garcia of Whittier, California has been a fighter since she was born. The 10-year-old has an extremely rare condition known as Nager syndrome, which affects the development ...

An Irish mother whose daughter was born with a rare genetic condition has written and illustrated a children’s book to help celebrate difference. Sarah Gannon, an occupational therapist living in Co ...

Ella Glendining embarks on a quest to connect with others who share her rare disability. Born with a rare disability, filmmaker Ella Glendining wonders if there is anyone who can share the experience ...

I was born with a rare disorder you have almost certainly never heard of, Moebius syndrome. This means I have facial paralysis and limited lateral eye movement. Moebius syndrome is highly visible but ...

When Kendra Gottsleben was growing up, she wore dresses made by her grandmother. Many grandmothers care for their grandchildren this way, but Gottsleben was born with Maroteaux-Lamy syndrome, a rare ...

A film about a Kent boy who lives with a rare condition has been nominated for a Bafta TV award. Sky's Disability & Me documents the life of George Tappenden who lives with Spinal Muscular Atrophy ...

Dani Medina thought she was dying. A rare genetic disorder and a severe case of COVID-19 left her rapidly declining. Her response was to pack her bags: “I’m just gonna travel and then die.” She ...